Regional Ambassadors

Connect with Regional Ambassadors via email. We’d love to speak with you and discuss local resources for you and your child with MEF2C Related Syndrome. STAY TUNED for the Regional Rep Resource Guide and our updated Events page to explore opportunities to meet other families and to attend MEF2C-friendly events in your region.

Be inspired by MEF2C advocacy efforts of the Olson family in Minnesota, and MEF2C Awareness Day on May 14th.

Follow the journey of a MEF2C family, and learn more about key early intervention targets.

  • Laura Durns

    Mid-Atlantic

    Pennsylvania

    Laura has a son with a MEF2C variant

    Email Laura
  • A woman with blonde hair, wearing sunglasses, a white and blue striped shirt, and a white jacket, standing on a dock next to a young boy with brown hair, wearing a green polo shirt. The woman is smiling softly, and the boy is making a playful face. In the background, there are boats, dock equipment, and a gray building, indicating they are at a marina on a sunny day.

    Anne Lenzin

    Mid-Atlantic

    New York

    Anne has a son with a MEF2C variant

    Email Anne

  • Suzanne Bean

    New England

    Massachusetts

    Suzanne has a son with a MEF2C variant

    Email Suzanne

  • Judy Daprano

    Southeast

    Florida & Georgia

    Judy has a daughter with a MEF2C variant

    Email Judy

  • Tom Westermyer

    Southeast

    Florida

    Tom has a granddaughter with a MEF2C variant

    Email Tom
  • Woman in a black hoodie and a winter beanie holding a mug of whipped cream topped with cinnamon, smiling for a selfie indoors.

    Kelly Olson

    Midwest

    Minnesota

    Kelly has a daughter with a MEF2C variant

    Email Kelly

  • Stella Jeong

    Midwest

    Illinois

    Stella is a DPT on our Therapeutic Advisory Board and has a daughter with a MEF2C variant

    Email Stella

  • Jennifer Bhalia

    Pacific Northwest

    Oregon

    Jennifer has a son with a MEF2C variant

    Email Jennifer
  • Amanda Pedrajas Gual

    Amanda Pedrajas Gual

    President & Founder

    MEF2C Association Spain

    Amanda is the president and founder of the first MEF2C advocacy organization world-wide

    Email Amanda

  • Marija Max

    International Representative

    Germany

    Marija is leading MEF2C advocacy in Germany

    Email Marija

  • Josephine Schembri

    International Representative

    Malta / Italy

    Josephine is leading MEF2C advocacy in Malta

    Email Josephine