MEF2C Awareness Day
May
14

MEF2C Awareness Day

Spark awareness. Ignite change. Radiate kindness.

On May 14th, light a blue candle to show your support for the MEF2C community! Share a photo of your family's flame on social media to shine a light on unity, advocacy, and groundbreaking research.

Why May 14th? It’s More Than a Date—It’s a Symbol!

The MEF2C gene holds the key to deeper understanding and vital progress, and its location—5Q14.3 on the 5th chromosome—makes May 14th the perfect day to raise awareness and inspire action. Let's all come together on this truly meaningful and powerful day!

Hyperlinks of participating landmarks for 2026 MEF2C Awareness Day

 

Arizona

Eloy Water Tower

Lake Havasu City - London Bridge

Phoenix - Mayo Clinic

Tempe City Hall

California

San Diego Convention Center

Delaware

Dover - Delaware Legislative Hall cupola

Florida

Jacksonville - Daily's Place Amphitheater at Everbank Stadium

Jacksonville- Mayo Clinic

Miami- Kaseya Center

Stuart - Martin Arts Courthouse Cultural Center

Wellington- Clock Tower and Promenade

Georgia

Columbus - Columbus Civic Center

Illinois

Chicago - Centennial Wheel at Navy Pier

Indiana

Fort Wayne- MLK Memorial Bridge

Iowa

Council Bluffs- Cross-Over Fountain

Waterloo - Cedar River Lights

Charles City- Charles City Water Tower

Kansas

Kansas City - Unified Government of Wyandotte County City Hall Building

Kentucky

Lexington - Helix Garage and 360 West Short Garage

Maine

Lewiston - City Hall Clock Tower

Massachusetts

Cambridge - City Hall

Foxborough - Gillette Stadium

Minnesota

Eagon- Sperry Tower

Granite Falls- Roebling Bridge

Minneapolis- 1-35W Saint Anthony Falls Bridge

Minneapolis - Capella Tower

Rochester - Mayo Clinic and 

Mayo Clinic Health System sites across Minnesota

Mississippi

Biloxi - Biloxi Lighthouse

Missouri

St. Louis – Civil Courts Building

Nebraska

Omaha- Bob Kerrey Pedestrian Bridge

New Jersey

Midland Park Borough Hall Front Porch

New York

New York City - 230 Park Avenue - The Hemsley Building

Poughkeepsie - Mid-Hudson Bridge

North Dakota

Grand Forks - Alerus Center

Ohio

Akron - 7 17 Credit Union Park

Strongsville - Strongsville Clock Tower

Oklahoma

Oklahoma City- Skydance Bridge

Pennsylvania

Johnstown - The Stone Bridge

Philadelphia – PECO Building

Rhode Island

Warwick - City Hall Clock Tower

South Carolina

Rock Hill - Rock Hill Water Tower

South Dakota

Mitchell- The World's Only Corn Palace

Tennessee

Knoxville - Henley Bridge

Mt. Juliet - Town Center Clock Tower

Texas

San Antonio - Alamo Quarry Market Smokestacks

Virginia

Roanoke - The Berglund Center

Virginia Beach - Virginia Aquarium & Marine Science Center

Washington

Seattle - Columbia Center

Seattle – Seattle Convention Center

Wisconsin

Milwaukee - The Domes at Mitchell Park Horticultural Conservatory

Mayo Clinic Health System sites across Wisconsin

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Jan
15
to Jan 16

Boston Children's Hospital In-Person Patient Research Assessments

2nd round of in-person research assessments with the Lab of Dr. Wendy Chung at Boston Children's Hospital

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Nov
10

Epilepsy Awareness Day @ Disneyland® Resort

The 13th Annual
Epilepsy Awareness & Education Expo

The Largest Gathering Of Epilepsy
Physicians & Patients On Earth

Epilepsy Awareness Day | Epilepsy Awareness Day at Disneyland

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Oct
25

Logistics on MEF2C In-Person Patient Research Assessments

Logistics on MEF2C In-Person Patient Research Assessments:
Jessica Waxler | Saturday, October 25th, 2025 at 9am ET
Registration Link: https://USMEF2C.click/26BostonWaxler
Zoom link will be emailed to registrants prior to the webinar

Register for In-Person Patient Research Assessments:
Dr. Wendy Chung | Thursday and Friday, January 15th and 16th, 2026 in Boston
Registration Links (please register with both):
https://USMEF2C.click/register_2026assess
https://redcap.link/interestmef2c

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New Scientist Spotlight: Dr. Chung
Aug
16

New Scientist Spotlight: Dr. Chung

🌟 New Scientist Spotlight: Dr. Chung | August 16th! 🔬

🧬 Dr. Wendy Chung, MD, PhD, Chief of the Department of Pediatrics at Boston Children’s Hospital, Mary Ellen Avery Professor at Harvard Medical School, and President of the Children’s Hospital Pediatric Associates, will be presenting on results from the first round of in-person research assessments at Boston Children’s Hospital in October 2024, along with details on the next round of assessments — including evaluations to be added in January 2026. 🧪

📊 The Simons Searchlight team will also attend to answer any questions you may have on the Simons Searchlight MEF2C data sets. ❓

📆 Register at https://USMEF2C.click/spotlight_chung

🔗 A Zoom link will be emailed out to you prior to August 16.

#MEF2C #USMEF2Cfoundation #MEF2Cnaturalhistory #MEF2C_BostonAssessments #simonssearchlight

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Jun
25

Scientist Spotlight on Jayne Aiken

Scientist Spotlight Series - Dr. Jayne Aiken,

Assistant Professor in the Department of Biomedical Sciences at Colorado State University.

Join us for a discussion with Dr. Aiken on how she is using the data we have created on Simons Searchlight to investigate MEF2C!

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Autism Takes Flight at ILM
Apr
5

Autism Takes Flight at ILM

Participants will have the opportunity to complete a trial-run airport experience, including: getting a boarding pass, checking a bag, going through security, waiting at the gate, boarding a plane, and riding a shuttle bus. Psychologists and Board Certified Behavior Analysts will be available as an option to provide assistance. Space is limited. Pre-registration is required. Arrival times between 9 am and 12 pm after registration closes.  

Registration for this FREE event closes on March 23, 2025

(March 17, 2025 to order a t-shirt). ​

If you have general questions about the event, please email us at autismtakesflight@gmail.com. 

Autism Takes Flight is proudly co-sponsored by Center for Pediatric Behavioral Health, 

Coastal Autism Solutions, ILM, and Live Oak Bank.

https://www.centerforpediatricbehavioralhealth.com/resources

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Philadelphia Union Gameday- At Capacity
Mar
1

Philadelphia Union Gameday- At Capacity

Uplifting Athletes is excited to invite one family to join us for a gameday experience with the Philadelphia Union at Subaru Park! Register to attend for free and cheer on the Union as they face off against FC Cincinnati on Saturday, March 1, 2025 at 6:30pm ET! This event will include game tickets, parking, t-shirts, food, beverages, and more! Subaru Park is ADA accessible. This Uplifting Experience is inclusive and accommodates individuals of all ages and abilities.

Contact us at UpliftingExperiences@upliftingathletes.org with any questions or concerns. 

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Gamebuddies: Inclusive Videogaming: ages 13+
Feb
28

Gamebuddies: Inclusive Videogaming: ages 13+

Join us for Gamebuddies: Inclusive Videogaming Using state of the art cloud gaming technology, ACF will be hosting a fun, friendly, and social gaming session for ages 13+. Play brand new popular games and classic beloved titles in a private lobby with your peers.

For more information about Autism Cares Foundation and Event Registration

https://autismcaresfoundation.org/contact-us/

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MEF2C Research Conference
Oct
19

MEF2C Research Conference

Join us on Saturday, October 19 to hear from experts from the fields of genetics and neurology about future research and treatment possibilities.

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MEF2C Family Get-Together
Oct
18

MEF2C Family Get-Together

  • 202 Reedsdale Road Milton, MA, 02186 United States (map)
  • Google Calendar ICS

Join us for a chance to enjoy dinner and drinks and meet other families with MEF2C related disorders! This will give us all a chance to chat with one another and unwind after the week's clinical research assessments have concluded. This social event will be hosted at the home of a local MEF2C family.

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Patient Research Assessments at Boston Children’s Hospital
Oct
17
to Oct 19

Patient Research Assessments at Boston Children’s Hospital

Families are invited to join us in Boston for a landmark clinical assessment, family gathering and research conference this October.

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Two Piano Journey Benefit Performance
Apr
13

Two Piano Journey Benefit Performance

The Two Piano Journey  featuring Michelle Chen Kuo & Christopher Kuo, an inspiring mother and son team who perform across the country to raise funding for non profit organisations, will perform on behalf of the US MEF2C Foundation to support life changing research for patients with a neurological disorder that causes a profound form of autism. This research will help to develop treatments and a better understanding of the genetic underpinnings of autism and related neuro developmental disorders.

TWO PIANO JOURNEY perform Romantic Era two piano works for MEF2C

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Rye Golf Club Swim-A-Thon
Jul
28

Rye Golf Club Swim-A-Thon

We challenged Rye Golf Club swimmers to swim laps for MEF2C Awareness. Proceeds went towards our mission to accelerate R&D of treatments for MEF2C mutations.

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